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Endometriosis Awareness Day Highlights

My Endometriosis March Day

I can’t believe this is the last week in March. This month has flown by so fast!!

It has been a fun, yet emotional roller coaster ride, that I must say has made me want to spend some quality time with my bed. But it has all been worth it, and this past weekend put the cherry on top for me.

Saturday, March 25th was the annual Endometriosis Worldwide March, and I decided to go all the way out with the Yellow Tutu. Special shout out the original Tutu group from the first march!

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I went to the Washington, D.C. rally at Howard University expecting to do a stroll around the block with other ladies in yellow to raise awareness. But instead, I was feed vital information about the state of research, treatments, healthcare laws and regulations and so much more.

I left feeling so full and excited about my next steps in my Endo Journey, as well as, the steps in Endometriosis advocacy.

Endometriosis Day Highlight Video

YouTube video

The Endo Room

The room was filled with bright yellow, smiles and magnet energy as people passed around tissue and hugged one another after sharing their stories. It was a day of validation that it really isn’t just in my head. It was a day of connecting with other women that wanted to do their part to make a difference. And it was a day of finding answers and solutions that aren’t always known by all OB-GYNs.

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Dr. Farr Nezhat, Dr. Smith, Mr. Sean Tipton, and the Howard University College of Medicine organizers.

The Doctors 

Dr. Farr Nezhat, one of the founders of the Endometriosis Worldwide March, the panel discussion with Dr. Hal Lawerence, Dr. Kevin Smith, Dr. James Robins, Mr. Sean Tipton, and Dr. Alan Decherney. They hit on key topics with depth answering a lot of questions I had and validating knowledge with facts about healthcare, disparities amongst minorities, treatments, and understand how Endometriosis works.

Meeting New People 

I left feeling like a weight was lifted off my shoulders, ready to put a plan of action in place for the next chapter in my journey. I was excited about sharing how it is possible. To live with Endo and not have it take over your life is always the mission.

The best moWorldwide_Endometriosis_March_KylaLivement of the day was when I went to give Victoria a hug and thank her for sharing her story. Little did I know, Victoria had something for me.

Oh, she shared that I was the first Youtube video she watched when she was researching Endometriosis. She was following my journey.

My heart sunk a little bit because often times you don’t know if what you are doing is really making a difference. Or, if you are just “over-sharing” for no reason.

She gave me that little nudge to keep going, and I will never forget that moment or her!

Thank you, Victoria!

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